I've tended to keep this blog kind of a running narrative on what's happening in our life, but I enjoy my friends' blogs who share more personal things and have been wanting to do that as well. So, I don't know why I always feel self-conscious about my blog, but I think I want to branch out a little bit in the coming year, so here goes.
I've been thinking a lot about perspective. How you can think one thing, but then the next thing comes along and puts the former thing in perspective and it doesn't seem so bad or good in comparison. Take, for example, Evan's relationship to Annie. It started like this:
but now has grown to this (but only sometimes):
What was the perspective change? Samuel going to school--so either he plays by himself or decides that his little sister isn't such a bad playmate after all. Again, this is only sometimes.
Or, I always thought peanut M&Ms were so great, and then I tried peanut BUTTER M&Ms and now I can hardly stand the plain peanut ones (okay, "hardly stand" is a bit of an exaggeration...I still grab a handful every time I open the MOPS cupboard at church).
So, last December, I went to the dermatologist to have my moles checked (man, I hate saying that...it sounds so old-ladyish) and the dermatologist was like, "Oh, you have rosacea" and handed me a pamphlet that included pictures of severely disfigured people with their eyes blacked out (to protect their identity) and suggested that this is what I would look like in 10 years. I went home and stressed about it and I think I even cried a little and could hardly look at my face in the mirror without thinking about the pamphlet. It seemed like the worst thing that had ever happened to me, health-wise. Then, I remembered that I had gone to the dermatologist to check for SKIN CANCER and everything was clear...so then I realized I had to be thankful that what I was diagnosed with was really just a vanity issue and had no real health risks.
Fast forward to this summer, when my knee started hurting. "Oh no, I might have torn my miniscus like Jeremy and I won't be able to run for a few weeks or I might have to have surgery!" I thought. How horrible, to have surgery to fix a problem in my knee. My perspective change came when the doctor said, "I'm surprised to see that it's arthritis...I'm not sure why you have it, it usually doesn't come until someone is in their 60's." Suddenly a torn miniscus didn't seem so bad.
Then, I started having some other health concerns, and after going back to the doctor I finally got him to take me seriously and got some blood work done and my tests came back positive for Lupus. Oh my. You can guess what I'm going to say now: Suddenly, rosacea and arthritis don't sound too bad. And just when I convinced myself that I would be fine and I would control my diet and excercise and be super healthy in order to keep the disease at bay and not have to go on scary steriods for the rest of my life, I found out that whatever is going on with me is probably affecting my hearing. My hearing! Now being in a wheelchair or having a knee replacement doesn't sound so bad.
Needless to say, the past few weeks have been...burdensome. It feels noisy in my head, all the wondering and wishing and the acute awareness of all pain or discomfort in my body. It's like every morning I wake up and have lupus lupus pain what's going to happen not me lupus going through my mind. And I haven't even been to the rhuematologist to confirm everything and discuss treatment yet. It's been exhausting and distracting and I keep waiting for the moment to come where I become this inspirational woman who fights through the illness and is commended for her amazing spirit blah blah blah. But I've kind of just been a big baby inside, which is not inspirational at all.
But, over the last few days, I feel a shift coming on. I realize how much of this possible diagnosis affects my vanity and pride, and those aren't bad things to have refined out of me, right? And I keep learning about young moms who have cancer or whose kids have serious illnesses and I keep being reminded about how much worse this could be. Perspective. The writer of another blog I love to read has posted prayer requests for other mothers struggling with far worse things than I, and only this week shared that one of her closest friends had a stroke while exercising and they are uncertain of what the damage to her brain has been or whether she'll even make it. Okay, I'll take my little not-yet-confirmed Lupus diagnosis, God.
But that's not where my perspective change really happened...it was when I remembered God. Not just trying to jump ahead to the lessons I think He wants to teach me but to think about Him. I listened to a John Piper sermon that said that the Lord's prayer starts with "Hallowed be your name" because that is the end of all praise--the very nature of God himself--and only ends with the "daily bread" stuff...on which I have been spending all my time focusing.
Then, yesterday, I took Sam to the funeral of a man from our church who was a World War II veteran and had spent 3.5 years in a Japanese concentration camp where he traded 14 cigarette butts for a Bible out of boredom and subsequently realized that being good wasn't good enough and spent the rest of his humble life proclaiming that message to others. He was missing an eye, and I still haven't heard where he lost it--someone said they thought cancer--and I thought that was significant...even in the testimony of all he had been through, losing an EYE wasn't talked about because he had decided what was most important and had lived with his focus on heaven.
And, do you know what? I woke up this morning with the words Jesus Jesus and the phrase I will enter his gates with thanksgiving in my heart running through my mind, and it has been a better day than I've had for a month. Perspective.
I don't know what's ahead and I of course hope that something flukey has happened and I don't even have lupus at all, but I know that it's okay if I do. For some reason, I wanted to write about this on my blog because I keep looking at the picture at the heading of my blog and thinking about the title--this world is not my home but God has given me a strong hand to hold while I pass through the bumpy parts. And anyway, there sure are still A LOT of great parts to enjoy!
Kaci thanks so much for sharing. You will be in my thoughts and prayers. Let me know if I can do anything for you.
ReplyDeleteI'm going to love and enjoy your blog no matter what you write or how your change it. Nicely written along with your upbeat smiley humor. Gotta love ya! You know I'm here if you ever need me and you are on my prayer list.
ReplyDeleteLove hearing your heart - so I can better pray for you AND so I can answer deep questions about you when you're interviewing for your next BFF, which I'd really like to be. :-) So seriously, I struggle with putting "real" stuff on my blog too because you just never know how it will be taken. Or I think people don't want to hear about my struggles, they come here to see pictures of my adorable children. But struggles, and adorable children, are a part of our realities, and our opportunity to bless others and also to be blessed by their responses (most of the time). All this to say... I am blessed by you, and by your perspective, and will be praying for you (whether I get the role of future BFF or not). :-)
ReplyDeleteVery apt timing for me to read this, Kaci- thanks for sharing. I'll be praying for you for the peace that passes understanding and for wisdom- for you and your doctor(s). Love ya.
ReplyDeleteThanks for sharing. Sorry we haven't had a chance to really talk since I got back. Sorrier (is that a word) that you aren't going to be here this week. I will be praying for you on all fronts. I know the Lord has great things ahead for you and your precious family. Don't be too hard on yourself. You are such an encourager to others. I want to encourage you and say how much I appreciate the heart you pour into your children, husband, home and all those around you. Wish I was there to pamper you today. Love you lots, Gamma
ReplyDeleteKristyn and I talked about this the other day, how as we get older, become mothers, wives, etc we become less selfish. It's a transition you make over the years. I think becoming less selfish allows us to look at things from different perspectives. It used to be about "me". Now it is about someone else. Someone else always has it worse. I don't know. Whenever I complain about something lately I think, that is silly. I am not saying what you are going through is silly at all, in fact it is very scary and sad that you have to go through that. I am so sorry you have fears, discomfort and worries. It is real and it is worrisome and you have every right to be concerned and have some questions. God will care for you and your family. I know you know that. You are a beautiful person, always have been. And you are that strong, inspirational person you want to be, even if you think you are not. I love all the pics of lately and of Christmas. What beautiful memories and times together as a family. Enjoy!
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